Two healthy, happy kids later and I’m realizing just how lucky I really am. I mean, obviously I realize that I’m lucky to have this family, but I’m so very lucky for other reasons that most people don’t have to think about.
I recently have received my hospital records for Brianna’s birth. I needed them to make sure I have the correct antibodies to put on my medical ID. Also to check that one, is in fact little c and not big C, because one is aggressive and the other isn’t. Unfortunately I confirmed that I have little c, the aggressive one.
Why would I consider myself so lucky when the odds of me getting sensitized to an antibody is .02% or less? I am so lucky because it didn’t effect Brianna, and I didn’t need a blood transfusion during surgery. I’m also lucky because I have a very supportive husband and family and I have found an amazing support group.
In my support group there are about 800 moms who have antibodies, this is world wide, not just in America. These past two months alone, about 5 moms have lost their babies to antibodies. These aren’t early losses, but second and third trimester losses. (There’s also some in the group that have lost their babies days to months old after birth)These women are some of the strongest people I have ever been in contact with. (Prayers and positive thoughts are welcome for these amazing women and their precious babies, ones in heaven and on earth)This group has the leading doctor on antibodies contact information and resources readily available. It’s amazing how many doctors do not know about antibodies and the treatment/standard of care to help these moms. Luckily this group has the latest research, medical journal publications and other very important information for moms to bring to their doctors. I can’t tell you how many babies have been saved by this group and their knowledge and persistence to make sure each mom has the proper care.
I’m amazed reading the notes between my doctor and the blood bank doctors before my c section with Brianna. I found out that the two units of blood set aside for me were not suitable for transfusion if my doctor had gone through with my c section and I needed blood. (Meaning it could have been life threatening to me if transfused.) I have one amazing doctor who didn’t know much about the antibodies but was wise enough to put my surgery on hold. (They found blood that was safe after 4 days)I’m so blessed that she has safely delivered both my kids.
I also found out that I don’t carry antigen E or K which means if my husband carries either of those, I could form antibodies to those as well (when we have more babies). This is very important to know for the future, especially since K is another aggressive one.
The last reason I’m so lucky is because now I have a huge passion and purpose I didn’t have before: To help others who have no idea about antibodies and raise awareness on how dangerous this is. (I had no idea!) I’m sure most of you have heard of the “rh factor”, and that if the father is rh+ and the mom is rh -, the mom needs to get a RhoGam shot while pregnant and after birth. This is actually antibody D, and the only antibody that has a treatment to prevent isoimmunization. So please, if you are a mom who is rh negative and the father is positive, please get the shot. (This only helps if you are not sensitized yet!)It could save your babies life. It could also prevent Mca scans every 1 to 2 weeks, blood draws every 2 weeks, possible intrauterine blood transfusions, delivery at 35 weeks or before, anemia in the baby as well as jaundice, and other complications . That’s what an isoimmunization pregnancy looks like, and this shot can help prevent it with antibody d. I wish they had more shots for all the different antibodies, then it wouldn’t be such a tough decision to have another baby or not. (Once you are an iso mom it never goes away and typically gets worse with each pregnancy) If you are a mom who has antibodies, has had an iso pregnancy or knows a mom who has been diagnosed and is looking for information, please contact me and I can get you in touch with the support group. It’s a very private group full of support and information. Amyhealthyliving@hotmail.com